"With profound sadness as well as tremendous gratitude for her two organ donors and donor families, the love of so many family, friends and fans, and the brightness she brought to all of our lives, we regret to share that Ana Stenzel passed away... following a hard fought battle with intestinal cancer. With her transplanted lungs, she was breathing easy until the end. We are so pleased that Ana's legacy will live on in "The Power Of Two" and in all of our hearts." --The Power of Two
March 2012:
Isabel Stenzel Byrnes & Anabel Stenzel
We've heard Anabel's story about the process of publishing and now Isabel elaborates on the journey that followed.
My name is
Isabel Stenzel Byrnes, and my twin Ana and I published, The Power of Two: A Twin Triumph over Cystic Fibrosis in 2007. Ana
already elaborated on our writing journey, but I’d like to share our adventures
following the release of our book. Only nine months after the publication of the
UMP memoir, my Japanese mother’s long-time friend submitted a query letter to several
Japanese publishers. Iwanami Shoten, the second largest publisher in Japan,
agreed to translate The Power of Two.
After painstakingly editing down the manuscript to one-third of its’ length, Mirakuru Tzuinzu (Miracle Twins) was
translated and published in September, 2009. Just a few months earlier, after
much debate, Parliament passed Japan’s groundbreaking organ donation law, thus
making organ transplantation a hot topic for public discussion. Organ donation
remains highly controversial in Japan, a country that generally does not accept
brain death and has numerous religious superstitions about death—and organ
donation. Our book would be a welcome personal story to highlight the benefits
of organ donation to recipients, while also portraying the healing from grief that
organ donation can offer to donor families. A small group of Japanese organ donation
and cystic fibrosis advocates embraced our book and organized a ten- city book
tour. After speaking limited Japanese in the home growing up, Ana and I crammed
and prepared professional, medically-oriented Japanese lectures about our
lives, perspectives on illness and death and the ethics of organ donation. Our
mission: to be outspoken Japanese-American advocates for this life-saving
cause.
A few
months before our anticipated Japan tour, my husband, Andrew Byrnes, met a
filmmaker who focused on social causes. Marc Smolowitz, an Academy-Award
nominated filmmaker, read our book immediately and felt compelled to create a
film. Since Ana and I had retained the rights to film from UMP, our plunge into
cinematic storytelling was rather straightforward. My husband-turned-producer
initiated fundraising efforts, and before long, a film crew of five joined us for
a 26-day tour of Japan in October, 2009. We traveled from tropical Okinawa to
cool northern Sendai; we lectured all over Tokyo and managed to visit historic
temples in Kyoto, in between lectures at medical schools and public
consortiums. Our relatives joined several events and we appreciated the chance
for such a special reunion. The book received positive reviews and sold well at
our events, although we couldn’t read it ourselves! The Japanese were visibly
fascinated by our stories: in Japan, illness carries a stigma and most patients
are not public about their experiences.
After
capturing nearly two hundred hours of interviews and scenes of the Japan
Transplant Games and other cystic fibrosis and organ donation awareness
activities, we returned home. Marc and Andrew decided to contrast Japan’s organ
donation situation with film shoots at the U.S. Transplant Games and our
advocacy work in Washington, D.C. After tremendous efforts, we raised enough
money to complete the 94-minute film, also called “The Power Of Two.” While the
film is inspired by our UMP memoir, it is so much more than our story. The film
is a story about hope, survival and love. It also highlights the miracle of
breath: something that we can all cherish. By featuring people who are waiting
for- and who have received- the gift of lung transplantation, we are sharing
the experience of a small segment of society who struggles to breathe, and who
find that struggle alleviated by the generosity of organ donors. The complex
cultural issues highlighted make this film globally relevant.
Since the
film’s release, “The Power Of Two” film has been accepted into 20 film
festivals and has received seven awards. In August, 2011, the film premiered at
the Oscar-qualifying DocuWeeks theatrical showcase in Los Angeles and New York
City, and in October, the film premiered in Asia at the Tokyo International
Film Festival. We will secure a film distributor in the U.S. and Japan shortly.
In this competitive cinematic landscape, we are very satisfied with the film’s
success. We have also hosted numerous community screenings nationwide with
non-profits and educational institutions to use the film to educate the public
about cystic fibrosis and organ donation.
What a
whirlwind! We never, ever imagined that our life experiences with CF would
unfold into such extraordinary benefits like a UMP memoir, a Japanese memoir,
and now a documentary film! And, these opportunities are just the icing on our
cake of life... just to be alive and breathing well is a gift enough, and now
we have one blessed opportunity unfolding after another. We are especially
grateful to the entire UMP staff, which has supported us tremendously through
our unconventional publishing adventure.
Thank you
for reading our blogs. Right now, please stop and take a slow, deep breath and
feel your life force enter all the way to the depths of your lungs. If you’d
like to see if “The Power Of Two” film will be screening in your area, please visit
our website at www.thepoweroftwomovie.com. Thank you for your interest. May you be blessed with deep breaths
always,
Isabel
Stenzel Byrnes
To sign up to be an organ donor, visit
www.donatelife.net.
1 comment:
A few months before our anticipated Japan tour, my husband, Andrew Byrnes, met a filmmaker who focused on social causes. Marc Smolowitz, an Academy-Award nominated filmmaker, read our book immediately and felt compelled to create a film.
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